Image source:Pixabay
Have you ever wondered what’s on the birthday wish list of a person who is chronically ill?
What could he possible ask for? Would his wish list look similar to yours? Let me start by saying that the correct answer is not a present. Not a book, nor a gift or a warm pair of socks! He doesn’t dream of any of these.
What a Lyme sufferer really wants is to get well and leave behind this bad dream. Since getting a cure for Lyme is not a viable option (yet!), his second wish for his birthday is recognition. It may sound strange to you, since only an insider to this condition may know what that really means.
A lymie wants and needs recognition for his condition.
It is his right to be treated with the same respect and dignity as any other human being who needs treatment and care. The last thing he needs is a stranger telling him his illness does not exist, that his symptoms are psychosomatic or to be treated as an attention seeker patient.
Unfortunately the lengthy process of diagnosing Lyme requires him to pass through various hoops. In order to get a proper diagnosis, he has to see an endless list of specialists, hoping that at least one of them would be Lyme literate.
A person infected with Lyme needs and deserves to be given and same type of care, as any cancer fighter, AIDS sufferer or any other type of autoimmune disease patients (MS, Lupus, RA, etc.) when he reveals his burden. Sadly, instead of empathy and compassion he faces raised eyebrows, closed doors, multiple misdiagnosis and even ridicule.
This scenario is not only happening within the doctor’s office but sometimes it occurs within his family as well, which makes it even harder to deal with. It’s no surprise that anxiety and depression come along with Lyme! It’s tough enough that he has to cope with all these symptoms caused by Lyme and the co-infections. Having to reassure others that he is not faking the symptoms is just too much!
I bet that it never crossed your mind that a Lyme sufferer has to worry about losing his disability income just because others believe he doesn’t look sick enough. Anyone dealing with an invisible illness, becomes an easy target to all sorts of acid comments or remarks which can have a negative outcome.
A Lyme patient is fed up of being asked if his condition is real or not.
He’s tired of seeing so many doctors and not getting an answer to the questions: Why his body is falling apart? or Why he is denied treatment?
His illness is as real as you are! Just because your knowledge is limited, it does not mean you can label him or decide his faith. What you can do is learn, educate yourself in order to grow compassion and empathy towards those who got affected by chronic Lyme disease.
A Lyme warrior is done dealing with politeness and rhetorical questions coming out of ignorance or oblivion.
Why a Lyme warrior and not simply a patient? What sets him apart from the rest is his incredible strength to fight for his right to treatment, as he deals on a daily basis with the burning under the skin, chronic fatigue, joint pain, flares and so on…
Even on a good day, which rarely happens, a Lymie has to cope with pain. Life doesn’t stop just because he got sick. Life goes on and so does he. Kids need to be cared for, meals have to be cooked, chores have to be attended, homework has to be done, etc.
Ask yourself if you’d be able to cope with all these and still move on with your life, before you question or judge anyone affected by a chronic illness!
Here are other Lyme-related posts:
CHRONIC LYME DISEASE IS A REAL THING
TOP 10 WORST SYMPTOMS OF LYME DISEASE
WHAT ARE THE SIGNS AND SYMPTOMS OF LYME DISEASE?
WHY IS LYME DISEASE TOUGH TO DIAGNOSE?
HOW CAN YOU PROTECT YOURSELF AGAINST TICK BITES?
JOURNEY TO SELF-DISCOVERY?
HOW I FOUND THE SILVER LINING OF LYME DISEASE?
9 WAYS TO KEEP A RELATIONSHIP GOING WHEN BOTH PARTNERS ARE ILL?
All of the above posts were written by me, as part of my Lyme Disease awareness campaign. They were originally published on my personal website A-ZLYME.COM .
If you would like to learn more about Lyme disease, visit A-ZLYME.COM. On my A-Z Lyme blog, I post weekly Lyme-related articles which I might re-post on Steemit, in order to increase the awareness about this infamous illness.
Unless stated otherwise, all photos used in this posts are taken and owned by myself. If you wish to use any of my images, please contact me!
Thank you for reading, I hope you enjoyed it! Please leave your feedback in the comments, I would love to hear your thoughts!